Need a Medical Procedure in June or July?
This is a blog from last year, but it is important enough to review it annually (like we review our Advance Directives) as it is one constant in the health care system.
If we talk with our friends and tell them of an impending elective surgery or medical procedure, often we are met with, "Don't go in July. The new "doctors" are there, and they don't know anything." And June isn't much better, as the fellows typically have one foot out the door, and some people often complain that the care is lacking. Is it true? Are we more vulnerable at the end of June and in July, when many of our doctors went from Mr., Ms. Mrs. to "Dr. Smith" overnight? It may be, but it reminds us of the need to continue to do our due diligence and not assume that things will "flow" perfectly" and there will be no glitches in our care. So, how do we do that?
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Death Doula
I am a volunteer Death Doula for my local hospice. What is a Death Doula? I assist patients and their loved ones as they are near passing away. It is a very humbling experience and makes the family feel better. I believe people can still hear as they get ready to die, and I try to comfort them and let them know they are not alone.
Usually, I am a Death Doula at the facility, and patients at this point no longer receive anything by mouth, food, or water, but they are very comfortable, and nature takes its course. Today, I am at a nursing home, and I am both sad and appalled. The patient is an 83- year-old who had a stroke, and I was told: “actively dying.” However, she is still getting fluids by IV, being fed through a feeding tube, and presently is breathing at 52 breaths a minute! The average person takes approximately 15 breaths a minute. This woman is using every bit of strength to breathe. It’s exhausting! And this is where morphine has a role. It helps with pain and controls breathing.
And Medicare continues to pay. Why? Did anyone discuss her prognosis with the family? Do they understand that she is struggling to breathe? Did she have an Advance Directive? I don’t know if she is a full code, meaning, if (when) her heart stops, will they administer CPR?
We need to prepare for death as we prepare for childbirth, and my being here today
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Dementia-- The Impact of a Diagnosis
Dementia-what is it? We hear this word thrown around lately by anti-Biden people, anti-Trump people, the media, and people in general. And it is not a term to use lightly, yet I see it more and more daily. The National Institute on Aging states, "Dementia is the loss of cognitive functioning—thinking, remembering, and reasoning—to such an extent that it interferes with a person's daily life and activities." The Oxford Dictionary defines it as "a condition characterized by progressive or persistent loss of intellectual functioning, especially with impairment of memory and abstract thinking, and often with personality change, resulting from organic disease of the brain."
There are many variants of Dementia (but for now, we will focus on two). The most common is Alzheimer's, which is typically progressive. When I hear the word, I picture a shriveled-up little old lady sitting in a corner languishing, waiting for the day when she doesn't wake up again. The other common form of Dementia is due to vascular changes, i.e., mini-strokes, each one slowly killing off a piece of the brain, making it more challenging to function, live alone, and perform ADLs (activities of daily living), and the progression can be slower. One day, a loved one may notice that mom or dad isn't the same. They get lost when driving, forget to turn off the burner or take their meds, have a short-term memory that isn't good, and may exhibit personality changes. They may be short-tempered and get angry when they are challenged about remembering something that you KNOW you told them ten times. But it would be best not to get angry because they know something is changing and are often frustrated and scared.
A physician typically makes the diagnosis after possibly talking with loved ones who are concerned, verifying it with a neurologist or geriatrician, gathering medical history, and perhaps performing a MoCA cognition test. It is a quick test used to accurately access short-term memory,
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6 Years as an Advocate
Six years ago, I left my job as a Physician Assistant in Oncology and Hematology and took the plunge: I became a Board Certified Patient Advocate. I had been interested in advocacy for quite some time, and, working in oncology, I readily advocated for my patients and their loved ones. There are so many different ways that advocates can help, and I decided my niche would be working with those newly diagnosed with cancer and helping them navigate the healthcare system without the use of Dr. Google and well-meaning friends.
Over time, it has morphed, and while I am still working with cancer patients, I am working more with people with impending death and their loved ones, as well as people with chronic, often terminal diseases. We work on their Advance Directives, which are so vital. Many people do these along with their wills with their attorneys, yet if you ask most attorneys, unless they are elder care attorneys, they don't "do a great job." To do a thorough job with advanced directives means explaining and understanding all of the moving pieces, and it can take hours to have an Advanced Directive where everyone is "happy." As a PA, I have stood over too many bedsides with loved ones arguing
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A Healthcare Quandry
I find myself in no man’s land this weekend, and I am not alone. Two days ago, I was “under the weather,” had a low-grade fever and cough, and was just exhausted. I have had all my shots, but we just returned from a trip to the mountains with the grandkids (and their parents), gone to restaurants, and figured it may be time to give up my banner as “Covid Unscathed.” I took a test, it was negative, and I went to bed. My fever inched itself up towards 102 and stayed there. (I am of the belief that you treat the symptoms, not the fever). The next day, it was the same thing but worse: more coughing, fatigue, and a fever. Oh, and when I swallow, it feels like a knife sticking in my throat. But, what to do? I took another Covid test and it was negative again. Go to the ER where I will be exposed to more illness, and I am not an emergency. So I will sit for hours, and feel guilty because people are really there and deserve to go ahead of me. Go to a free-standing health center, whereby I can at least get tested for flu and strep and be sure I don’t have pneumonia. But despite the fact that insurance does pay, it is ridiculously expensive. Or ride it out in the comfort of my home.
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We Are All Going to Die—Make it Easier for Loved Ones
If you have been to a doctor, had a medical procedure, or found yourself in the emergency room, you were asked: “Do you have an Advance Directive?” We are also reminded about the importance of a Will, and speaking to loved ones about our wishes, but I venture to say many of us have not done any or all of this. The thought of dying is terrifying, so we may do one or more things and “shut the box” metaphorically.
I have done my Will (six years ago, and it is currently being evaluated and possibly re-done). I have completed my Advance Directives, and I am trying to do some talking with my family about my wishes. But often, the conversation is difficult to have; there is no time, grandchildren want our attention, and we are willing to use any excuse to avoid it.
Meanwhile, there is so much more to preparing for death than just the above. Look around your house; suppose you become ill, have an accident, and never return home. Would you be embarrassed if your daughter-in-law looked in your nightstand drawer? Have you left everything in order for your spouse and children? I will admit that I have not, which is unfair to those I love. I don’t plan to die tomorrow, but things are not in order, and they need to be.
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Resolutions
Virtually all of us make resolutions for the coming year. In years past, I used to think about them and write them out, and within a few weeks, most of them had been “broken.” That is because once I didn’t exercise every day (a typical one), I didn’t “forgive” myself, considered it broken permanently, and that was the end.
But as I get older, I no longer agonize, and they don’t necessarily have to be starting January 1. They can be January 4, February 10, or June 10. And I no longer call them “resolutions” but “intentions.” And if I don’t exercise or don’t meditate for a few days, I pick up and do it later. I am kinder to myself.
There is no magic in a new year; it is whenever we decide to adjust or change our lifestyle, family, or whatever we choose. And we need to constantly make changes because this is how we change and evolve.
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Post-Holiday Observations
As the New Year begins, many of us have been fortunate enough to have spent some or all of the holidays with our loved ones. Perhaps it was in person or over Zoom, but enough time to have concerns as our older family members may be showing signs of aging, be it memory, confusion, walking a little slower, out of breath, etc. And we wonder whether they can still live alone or take their required medications. We worry as we may not live near them.
Should they still be driving or managing their finances? Are they taking their medications as directed? When asked, they may not know why they are taking the drugs, who prescribed them, or for what medical issue.
And we worry, often with good reason. We also realize that they will probably go to their doctors' appointments unaccompanied, but 1-you live out of town, 2-you are busy with your children and work, and 3-they are stubborn and won't accept your help or suggestions.
So, what do you do when faced with these problems?
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Stress
I would venture to say that most of us (and probably everyone reading these posts) are going through excessive stress right now and are unsure how to handle it. As we all know, stress can accelerate illnesses and cause illness. I don't know about you, but my stomach is a ball of knots, and sleep is sometimes elusive.
So, what do we do?
1. Take time for yourself, even if only for a few minutes. Breathe. Close your eyes, sit in a chair, and slowly take in a breath (I picture this breath blue), hold it for a few seconds, and let it out slowly (this is pink). You will be amazed at what a few minutes of mindful breathing can do.
2-Write a gratitude journal, and make it specific, not just "I am grateful for my home" but "I am grateful for my home, and know that I am safe." "I am grateful for my cellphone because I can keep in touch with those I love." If not, use phrases like "my bed," "fresh coffee," and "a new dress." A gratitude journal can help you slow down and appreciate the simple pleasures in your life. Also, spin them in a positive way.
3-Watch less (or no) news. Some people are glued to the news. While it is important to be apprised of what is happening, news doesn't change significantly (or affect us) over a few hours. Take a news break; the news will still be there when you return.
4- Put on dance music, as loud as you want, and dance around the house for 5 minutes. It will help you emotionally and physically.
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Like a Well-Oiled Machine
My mother-in-law Mildred used to say, “What is the difference between major and minor surgery?” “Minor is everyone else and major means it is you.”
About two years ago, my husband complained of knee pain, the sensation of his “knee locking,” as well as difficulty walking and getting up and off the floor. Like many wives, particularly those of us who have worked in health care (oncology), anything short of hemorrhaging, a large mass, or chest pain was something that would “work itself out.” But it got worse. He got injections and tried heat, ice, and physical therapy. He saw different doctors and was told that he was “bone on bone” and would “at some point” need a knee replacement. Routine, except when it is you, then not routine.
It took him six months to choose a physician and more than four months to schedule the surgery. My biggest fear was that it would be canceled for some reason (Covid, the doctor being ill, etc.), as the timing was perfect, and if delayed, it would have affected a vacation and time with our children and grandchildren.
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